Our research approach

We will hold focus groups with citizens and experts in Sweden, Iceland and the UK to explore their understanding of current data sharing processes, preferences towards decision making and how they think permission processes could be improved, and how they evaluate risk when providing health relevant data in different situations.


We will then design an online questionnaire and disseminate it in each of these countries, and in Norway. The questionnaire aims to establish how people judge and respond to risk, how they balance this against potential rewards when making decisions about their data, and how contraventions against the decisions they have made would impact on their trust in the system.