Copies of all publications can be requested from the first named author, or by emailing Word versions of the articles will be posted here in due course, along with short, plain language summaries.


  • Mascalzoni D & Bentzen HB, Budin-Ljøsne I, Bygrave LA, (...), Kaye J. Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?. Ann Intern Med. ;170:332–334. doi: 10.7326/M18-2854

  • Bentzen HB, Høstmælingen N. Balancing Protection and Free Movement of Personal Data: The New European Union General Data Protection Regulation. Ann Intern Med. ;170:335–337. doi: 10.7326/M18-2782


  • Bentzen HB. In the name of scientific advancement. Submitted.


  • Bentzen HB. Context as key: Integrity preservation by means of the purpose limitation principle. To be submitted.


  • ​Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Mascalzoni D, Ursin L, Durnova A, Laitsalu L, Smith K, Casati S, Lavitrano M, Mayrhofer MT. Data in question: A survey of ELSI challenges in biobank-based research. To be submitted


Research Presentations


  • Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. The inaugural meeting of The Nordic Society for Precision Medicine; DeCODE, Reykjavik, Iceland, 2018-06-07 - 2018-06-08


  • Bentzen, Heidi Beate. Personvern og datadeling i medisinsk og helsefaglig forskning. Forskningsetisk forum 2018; Oslo, Norway, 2018-09-18


  • Bentzen, Heidi Beate. Shedding Light on Legal Aspects of Genetic Data Processing in the Cloud. EHiN 2018 Norges nasjonale e-helsekonferanse; Oslo, Norway, 2018-11-13


  • Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. Det 10. nasjonale fagmøtet i genetikk; Oslo, Norway, 2018-11-15

  • Bentzen, Heidi Beate. Formålsbestemthet. Om prinsippet og implikasjonene av prinsippet. Personvernkonferansen; 2018-12-07

  • Session chair: Brave New World: Learning Health Systems. Helsam sommerseminar 2018: Pandora’s Box: New Health Technologies; Oslo, Norway, 2018-06-04



Media Appearances