Publications
Copies of all publications can be requested from the first named author, or by emailing sarah.coy@dph.ox.ac.uk. Word versions of the articles will be posted here in due course, along with short, plain language summaries.
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Mascalzoni D & Bentzen HB, Budin-Ljøsne I, Bygrave LA, (...), Kaye J. Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?. Ann Intern Med. ;170:332–334. doi: 10.7326/M18-2854
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Bentzen HB, Høstmælingen N. Balancing Protection and Free Movement of Personal Data: The New European Union General Data Protection Regulation. Ann Intern Med. ;170:335–337. doi: 10.7326/M18-2782
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Bentzen HB. In the name of scientific advancement. Submitted.
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Bentzen HB. Context as key: Integrity preservation by means of the purpose limitation principle. To be submitted.
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Goisauf M, Martin G, Bentzen HB, Budin-Ljøsne I, Mascalzoni D, Ursin L, Durnova A, Laitsalu L, Smith K, Casati S, Lavitrano M, Mayrhofer MT. Data in question: A survey of ELSI challenges in biobank-based research. To be submitted
Research Presentations
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Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. The inaugural meeting of The Nordic Society for Precision Medicine; DeCODE, Reykjavik, Iceland, 2018-06-07 - 2018-06-08
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Bentzen, Heidi Beate. Personvern og datadeling i medisinsk og helsefaglig forskning. Forskningsetisk forum 2018; Oslo, Norway, 2018-09-18
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Bentzen, Heidi Beate. Shedding Light on Legal Aspects of Genetic Data Processing in the Cloud. EHiN 2018 Norges nasjonale e-helsekonferanse; Oslo, Norway, 2018-11-13
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Bentzen, Heidi Beate. Doing Right: Law and Precision Medicine. Det 10. nasjonale fagmøtet i genetikk; Oslo, Norway, 2018-11-15
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Bentzen, Heidi Beate. Formålsbestemthet. Om prinsippet og implikasjonene av prinsippet. Personvernkonferansen; 2018-12-07
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Session chair: Brave New World: Learning Health Systems. Helsam sommerseminar 2018: Pandora’s Box: New Health Technologies; Oslo, Norway, 2018-06-04
Media Appearances
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Bentzen, Heidi Beate and Mascalzoni, D. Amid GDPR Implementation, European Effort Drafts Code of Conduct for Sharing Health Research Data. GenomeWeb [Internet] 2018-10-25 (Link: https://www.genomeweb.com/informatics/amid-gdpr-implementation-european-effort-drafts-code-conduct-sharing-health-research#.XJN4ei3M1QJ A pdf is available here: http://www.bbmri-eric.eu/wp-content/uploads/amid-gdpr-implementation-european-effort-drafts-code-of-conduct-for-health-research.pdf)